Making Chromosomes Count
MCC launched in January 2020, with a vision that has been made possible thanks to a fabulous, passionate, eclectic, and international team of researchers, proof-readers, editors, contributors and other wonderful individuals who keep volunteering time they haven’t really got, in order to join us and help us in our quest to shift perspectives.
The team share a passion for raising awareness, amplifying the diverse range of voices within the community and offer a platform to any individual and organisation that seeks to share a story, highlight an issue or raise a campaign about any aspect of living with Down syndrome.
The MCC Journey
Making Chromosomes Count is Founded
First Newsletter Released
Instagram, Facebook, and Twitter Created
Second Newsletter Released
Third Newsletter Released
Fourth Newsletter Released in digital magazine format.
Colouring Book Released
Launch of first printed issue
Denise Humberstone becomes Trustee
Second printed issue released
Third printed issue released as Special Edition
Sarah Mayes becomes Trustee
Founder and Trustee
Stacey is the driving force behind Making Chromosomes Count. Wife and mother to four children. One of which has Down syndrome and one with Autism. Stacey and her son Evan were one of the 50mums|50 Kids video which went viral. She founded ‘Wouldn’t Change A Thing’ charity and Founder of Making Chromosomes Count. Since 2013 she has been involved in numerous positive awareness campaigns and projects. Stacey’s personal mission is to raise awareness of Down Syndrome through society.
Founder and Trustee
Sandy is the creative force behind Making Chromosomes Count. A graduate of Ridgewood School of Art and Design and the School of the Museum of Fine Art, Sandy decided to use her skills in design to help members of the Down Syndrome community to get their voices heard in magazine format. Sandy’s goal is to enable the community to share their lives with the world.
Trustee and Editor in Chief
Denise is a wife and mother to 3 children, one of which with Down syndrome and one with Asperger’s. Having lived in numerous countries across different continents (Saudi Arabia, UAE, India, France, China and currently the UK), she has experienced Down syndrome through various cultures, ethnic backgrounds and creeds which have all contributed in shaping her unique perspective and vision of the condition. She gave an impassioned speech as a guest speaker at the United Nations in Geneva. One of her key areas of interest is to challenge and update the mainstream framing of Down syndrome.
Trustee and Social Media Manager
Sarah is Mum to Tilly and Izzy. Izzy is two years old, has Down Syndrome and is an Ambassador for MCC. Sarah joined Making Chromosomes Count in order to spread awareness of Down Syndrome. Izzy has some complex medical needs and Sarah is passionate that a rounded view of Down Syndrome should be made available to new or future parents, as well as medical professionals.
JULIE HELEN WILLIAMS
Administrator and Researcher
Julie is mother to Evan, who has Down Syndrome and two older daughters. Julie was proud to be Mum number 50 in the original Wouldn’t Change A Thing video. Now part of the team at Making Chromosomes Count, Julie aims to continue spreading awareness about the reality of life with Down Syndrome.