Are You Serious? Down Syndrome Awareness Month AGAIN?

How many more years will we have to put up with that?

Is that what you are thinking?

Well, let me tell you: #AsLongAsItTakes

Why is it so important you may say? .…

1/ It’s important for expectant parents who may have just received a diagnosis of Down syndrome and hardly know anything about the condition except perhaps stuck-in-the-past views here and there. Chances are they will be offered a termination pretty much on the spot. They will have to make a decision without much time to think about it and without being offered balanced information. With awareness campaigns such as this one, perhaps that decision will be made after seeing the other side of the picture, the LIVED side of the picture. Then, whatever the outcome, it will have been a decision based on real information…

Andrew (dad) Denise (mum) & Kathleen, months old.

2/ It’s important for new parents who have just received a postnatal diagnosis of Down syndrome for their baby and have no idea what to expect or even if they should expect anything at all! They need to be told about that amazing journey ahead of them straight from the horse’s mouth, not from medical professionals who might only know about the condition from outdated textbooks!

3/ It’s important for family and friends with a newly formed connection with Down syndrome. They need to know that it’s not the end of the world like they think it is, they need to know what the right terminology is, how to broach the subject, how to become a meaningful support.

4/ It’s important for medical professionals who are usually only exposed to the negative side of Down syndrome: from maternity units upon seeing the parents’ usually negative reactions at the point of diagnosis delivery (how can you blame them?), to all the array of appointments needed (checkups for heart, vision, hearing, speech and language, fine motor skills, gross motor skills, etc…) and witnessing very stressed parents (who are trying to juggle them all within their busy weekly schedule!). I mean, they never get to see the LIVED sides at home, the huge amount of joy individuals with Down syndrome bring to their family, as much as any other member if not more.

5/ And more than anything else, it’s important as long as their disability is placed before their abilities and used as an excuse to deny them their dreams, aspirations, and rights that they and their parents still have to fight for so hard to this day.

Kathleen (21)

So yes, we’re far from done. Until then, I’m afraid you’re stuck with all those wonderful pics and posts for many years to come! ❤️

Written by Denise Humberstone – Editor-in-chief  02/10/2020

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