Wouldn’t Change A Thing by Stef Fallows

Stef Fallows was recently appointed as one of two new trustees of Wouldn’t Change A Thing. She has spoken to MCC to give her view of how the organisation has adapted during the COVID-19 pandemic.

Wouldn’t Change A Thing have made some adaptations, as have most organisations, to the situation we find ourselves in as a result of the COVID-19 pandemic and subsequent lockdown/social distancing measures. We are fortunate in that most of our work is done on-line, from home, by a small but dedicated group of parents from the Down syndrome community, with the support of our larger awareness team.

Our awareness-raising campaigns are, for the most part, on-line – our biggest campaign of the year, for WDSD (World Down Syndrome Day), was released the week prior to lockdown. We are now in a quieter phase, although still busy behind the scenes with the day-to-day running of public social media pages and support group. We have taken into account the current situation when deciding on content for public posts during the lockdown period, for example posting about what some of our families are getting up to at home. We are also trialling a live ‘sing and sign’ session on our Facebook page, run by one of our families, taking into account that many people are looking online for activities and entertainment. This will run as part of our new ‘Saturday Signs’ feature, where we plan to post videos of WCAT members demonstrating Makaton signs, as well as featuring relevant blogs and resources.

Within our on-line parent support group, we have been posting little challenges and ideas of activities, sharing relevant resources and signposting to various on-line sessions that may be of interest to our families. We have also created a section on home-schooling resources within the support group, providing useful information for families who are trying to home school children during lockdown.

The WCAT team are supporting each other, as always, during what is a challenging time for everyone. We have even managed some video calls to allow face to face catch ups-much easier to organise with everyone confined to home! COVID-19 or not, our awareness-raising and support of the Down syndrome community continues! Like everyone, we look forward to life returning to normal, however are trying to remain positive and enjoy the time that this has given us with our families.



Wouldn’t Change A Thing Support Group, for parents/carers to children with Down syndrome only.



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