Hi. I’m Heidi and I’m 24 years old. I happen to have an extra chromosome!
But that hasn’t stopped me from being amazing and living a fun filled life.
I have spoken about disability rights all over – outside parliament, at the world Down Syndrome Congress in Glasgow, at the C of E Synod, in Parliament in Speakers House, amongst others. I speak on a range of subjects, including my path to independent living, training midwives about Down’s syndrome, and am currently part of a research team for helping young people have a say in their Education, Health and Care Plans.
I am an advocate for Don’t Screen Us Out – a campaign which is lobbying for NIPT (prenatal testing for Down syndrome) to be brought in with ethical considerations, and for parents to be given accurate and up to date information about Down syndrome when receiving a diagnosis. I supported Lord Shinkwin in his bill to bring back the cut-off date of abortion for disabled babies from up to birth to 24 weeks, in line with most abortions. With this page I would like to raise awareness about Down syndrome and to be a voice for those without one.
I have a fiancé called James and he also has Down syndrome. I have a job, live independently in my own flat, and I’m living the dream!
James and I are now engaged and are getting married on July 4th 2020.
Follow Heidi and her dreams here
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